Determination
Doesn’t that sound better than stubbornness, obstinacy,
hard-headedness, or mulishness? Basically, I’m all of those, and I doubt if I’ll
ever change. Since I was a kid, if someone told me I’d never be able to do
something, I’d work hard at sticking my heels in and proving them wrong. Nowadays,
I’m not quite as bad, but I never learned how to just accept that some things aren’t
happening, no matter how determined I can be.
My walking will probably never get better; it will only get
worse. Do I hope for a cure someday? Not really. I don’t see it happening in my
lifetime. I’m more disposed to an outright miracle! That said, though, does it
stop me from pushing to be better? Hell, no! I acquiesced when aids – the cane,
the walker, the scooter, and sometimes the wheelchair – became necessary. But I
fought them tooth and nail. I bought a snazzy cane, thinking it would help me
to give in to using it. Nope! I used to hide it whenever possible. The scooter
wasn’t easy to accept, and I did resist, but eventually I realized that I could
cover more ground. The walker is just an ugly thing. I use it mostly in the
house. Even though I know it’s keeping me upright, I still find ways to reject
using it. The wheelchair is the one I abhor! It screams to me that I’m
disabled. So once again, I get all stubborn and try to escape from using it.
I live with the belief that if I continue to force my legs
to work, that I’ll be mobile for longer.
That’s when the stubbornness takes over. No, I won’t give in to the
weakness. No, I won’t accept that I could easily fall. No, I won’t resign
myself to the inevitable. Utter fatigue may enter and try to convince me to
wave the white flag and just stop fighting. However, it goes against my nature,
and pacifist though I be, I’m still the valiant warrior against my nemesis.
Of course such determination comes with a hefty price tag! This past Saturday proved that point. We were supposed to have the little guy for the weekend, but plans changed. Instead, my daughter brought the two little ones to visit while her husband, the Doc, taught a weekend course at the nearby hospital. They arrived an hour early, and I was still getting dressed. Husband was working, so the three of them just played until I made my way downstairs. It was starting to be a fun day. Then the refrigerator repairman arrived an hour early (better than late, I guess.) The part had been shipped overnight delivery and was waiting to be installed. While he worked, we played in the family room. Then the guy (who was super sweet, by the way) informed me that there was still a problem. He asked if I could empty the freezer (I guess they’re not allowed?) and my daughter said she’d do it. She filled a large cooler and put the rest in bags to sit outside (it was 29°.) As she did that, I ‘watched’ the little ones – more like watched them go crazy. The baby kept crawling toward anything that looked interesting – the breakfast room, little guy’s scissors, pencils, and his carrier. His older brother just wanted my full attention. I hobbled around trying to keep things in order – I was totally convinced I could handle the situation! Then the daughter came back, little guy wanted a peanut butter sandwich, the baby wanted to nurse, I needed to run to the powder room, and Daddy Doc calls to be picked up at the hospital. I made the p/b bagel, daughter took the baby upstairs, DD was told to wait, and the repairman explained what had gone wrong and how he fixed it. He gently helped move the toy truck away, told me he hoped my day got calmer, and left. Daughter packed up, got the little ones into car seats, and she, too, left. I watched how easily she did these things, and
I realized how far I had declined. My ears were tired, my legs wobbled, my fatigue
was setting in, and my nerves were shot.
No amount of stubbornness would right that capsized vessel. I
spent the rest of the day in my chair in front of the TV. Did I learn a lesson?
Nope, I just became more determined to do better next time!
Peace,
Muff



12 comments:
Everyday seems I have to be stubborn or determined. LOL
It really is not funny though, the inability to complete a simple task. The worst is the part where I realize that I can no longer complete it.
Good that you have a repaired fridge now.
Oh, my, look at those two! I can tell by the look in his little eyes that that baby would give anyone a run for their money.
I keep going until I can't too Muff. The boys are so sweet, and they look so much alike.
From one warrior to another, I offer a brisk salute! The kids are darling.
And, thanks for the towel tip. I will use it.
HI MUFF - adorable little ones. :-) And ya, I push too - I so want to "be" "normal". sigh.
Love to you
Gail
peace......
You absolutely ROCK, Muff! I appreciate your sense of MS-be-damned determination. Push forward! It's like Jennifer and I make it an ill-advised habit to push on regardless. "Act now, ask for forgiveness later" is a mantra of sorts. Sure, it takes a little longer to recover (we'll be paying for our Super Bowl party and Jennifer's near-all-nighter working on her graduate paper for the next few days!), but we do it all because we can :-) Thanks for sharing and leading through your example. Dan
Sure sounds like you had fun and got many things taken care of. For me the time it take's to get up after sitting equals the amount of fun I had.
Here in the midwest, we'd call you a block-head!!! Good for you, that determination is what keeps you going. Those are two of the cutest little guys!!! I'm sure you enjoy their visits, even though they tire you out. And I'm betting you tired them out, as there mother drove down the road, they probably fell asleep in their car seats!!
What good is having MS without a stubborn streak? It's no good at all! Your grandies look great in their "angel disguises."
Hope the repair worked out well, and didn't cost an arm and a leg.
Jan, I think it's ingrained in us MSers that we must be hard-headed about these things!
Olga, I think a grandma would most certainly figure out those eyes!
Karen, I used to call the boys "Copy and Paste," but now they seem to be getting their own identifying looks.
Judy, I'm saluting back, with my left hand!!
Gail, Normal is what I say it is anymore!
Dan, ugh,graduate papers. I had only begun with the MS symptoms when I finished my Masters, but the doctorate stalled before I completed the dissertation. Good luck to Jennifer!!
Mary, I like the ratio!! And, I don't need a special algorithm to figure it out!!
Muffy, I know you're right about the older one falling asleep -- the littler one took a nap here! Blockhead? I like it!
Webster, we take out a repair contract with our utility company every year -- then repairs to washer/dryer/dishwasher/stove/ovens/and refrigerator cost us nothing! even with the overnight FedEx delivery, the charge was $0!!
Peace,
Muff
Sorry!
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