Spring

Saturday, January 26, 2013

Cold, Snow, Mother, and Frauds



Last year, we only had a few flakes of snow, and our weather was fairly moderate. When the temps stayed around 50° this winter, I thought we’d have a repeat. No such luck! For the past week, we’ve had highs in the 20s and often hit the single digits, with wind chills even lower. I suffer in such cold weather, and I just want to stay indoors in the warmth. I just can’t rationalize not visiting my mother, though. She gets frailer with each passing month, and her dementia keeps increasing. As long as she still responds when I say, “Hi, Mom,” I’m relieved. Most of the time, she’ll drink the lemonade we bring her, and then she falls asleep again. Sometimes, she’ll stay awake, but her distant gaze lets me know that she’s not totally with us. She’ll even say a few sentences, but usually they make little sense.

The other day, she was facing the patio, where dead leaves were blowing across the concrete. She shook her head and said, “Who’s going to clean up that mess?” I laughed and assured her it wouldn’t be her responsibility, to which she replied, “Well, that’s good. I don’t want to have to do it.” Now that little tidbit made some sense, but there are times when she just goes on about something nonsensical. I tell her about the cold weather and promise that she can stay inside. She feels my hand and shivers, saying, “Now, that’s really cold.” This is about as far as the conversation goes, but even if she dozes off, I still sit there with her. I know I won’t have her here much longer, and I want to have good memories when she’s gone.

That’s why I abide with the cold, even if I’m chilled to the bone. Parking there is also becoming a hassle. They now have a short-term rehabilitation (sub-acute care) section for people leaving the hospital. This means they have visitors daily, and that in turn means fewer parking areas. I’d like to report some of them, though. They use the few handicapped spaces by showing their blue placard. BUT, I’m convinced the card belongs to the person in rehab! These people are younger and able-bodied. Because of that, we have to park in the remote section, and my husband pushes me through the freezing cold wind. NJ has a new bill pending: all h/c placards will be renewed every three years, and you will need documentation in order to continue using it. The person who started the ball rolling was an MS person who was tired of seeing the placard fraud. (See here)

Last night, the snow arrived – not much, only two inches, but it makes it seem even colder. I never go to the home on Saturdays, so I’ll be hunkered down, staying warm. Gradually the weather will get warmer next week, and I’ll begin to thaw. With that trend continuing, I won’t mind stepping outside again. I just wish there were a way of transporting myself directly from the house to the car, and then the car to my mother’s nursing home. Beam me up, Scotty?

Peace,
Muff





7 comments:

Judy at Peace Be With You said...

Florida too is now requiring doctor recertification; apparently, at the behest of the MS Society. While I do believe there is abuse of the privilege, it is also difficult to know what exactly constitutes a disabled person through mere appearance. My mobility was fairly intact for decades and yet my less obvious severe chronic fatigue was equally disabling. That said, I am in favor of recertification.

My Odd Sock said...

You have the best perspective with your mother. Enjoy every day!

kmilyun said...

Making time for mother is wonderful in so many ways. The placard thing is a debate that I suspect will continue.

Jennifer Shaffer said...

Hi Muff,

Ya know, I have one of those placards. I have MS and there are days when I ABSOLUTELY REFUSE TO USE the handicap zones... Why is that? It is because I am having a GREAT day - one that I am grateful for - so I leave that spot for someone else who would need it worse than me... I have seen people who have no placard, no sticker, no license plate with the handicap designation; and they STILL park in those zones!!! Which irritates me more than anyone could know... IF I, a person with a debilitating disability who has the legal right to park in those zones, chooses NOT TO leaving them open for someone else; those who don't need to stay the hell out of them!!! However, the police in our area do not give a crap and do not enforce the laws... It is enough to get my dandruff up!!! IF the police would go around a ticket these idiots, it could do so much for our county... The police won't... I have NEVER seen our town police write a parking ticket in the 8 years we have lived in town... Believe me, there have been many occasions when parking violations citations should have been given; as per the PA Drivers manual or City Ordinances... Guess it takes all kinds to make the world go around... I just pray they never have to know the frustrations I feel every time I see a car like that in a handicap zone, which makes ME have to circle to find another one or a close spot on my bad days...

God Bless ya Muff for hanging tough in seeing your mother... It is a hard road you are traveling with her, but one you will not regret... Keep the course! Don't let those disrespectful LAZY idiots stop you from this special time with your Mom...

Hugs My dear MS friend,

Jen

Gail said...

HI MUFF-
Connecticut also, I need to verify my disability every 2 years to get my handicap thingy. Not sure what to call it cuz it's not a sticker - you called it placard? Cool, that's what i will call it too, a placard. Thanks.
I recall trips to my Moms nursing home vividly. It was in the heat of summer and the a/C in the home was not effective and the trek from the parking lot was brutal as well. I so understand just how hard it is to brave the weather and go.
Well, take care
Love to you
Gail
peace....

nicole said...

I often wonder about placard fraud too, but I try not to let it stress me too much, It sounds like you're at good place with your mom.

Muffie said...

Judy, I really don't mind having to document my placard use. It may ensure that the cheats get caught. Yes, I know that many MSers have invisible symptoms, but the people I see using the signs fraudulently have openly admitted to using a parent's or spouse's card. Shame!

Doug, Thanks, I will!

Jan, the placard issue shouldn't need a debate. I (we) need to figure a way it can be done honestly.

Jennifer, when I was newly diagnosed, I remember having better days when I could park anywhere,,and I did. Now, not so much! When I see this happening over and over (and when they park in the cross-hatch areas) I go nuts.

Gail, my mom's nursing home is good, and I feel welcomed there, but I think the nabobs who run the place need to assign better parking.

Nicole, I know -- choose my battles, but that day in the bitter cold made me angry.

Thanks everyone -- I appreciate it.

Peace,
Muff