I don’t spend a lot of time on the phone anymore. What with email, facebook, texts, and all, the simple phone call is a rarity. I’m also finding it more difficult to hold the phone up to my ear for any length of time. So, our land lines usually just sit and look pretty on the tables made for them! Occasionally, though, I will take the time, and expend the energy for a call.
I checked the caller ID last Saturday when the phone rang. Whew! It wasn’t a company calling about a late payment, but instead an old acquaintance. I had taught two of her three children, and spent a great deal of time with her youngest, who had a slight learning disability. I felt comfortable around her and her husband, we shared seats at the boys’ sporting events, and they invited me to parties for the kids. As with many such relationships, we lose touch as the kids move on. Once in a while I would hear from her, and we’d catch up on each others’ lives.
“Lily” was a school nurse (why are so many of my friends nurses?) but she took early retirement a few years ago. She called me then and we got chatted. I let her know I had been diagnosed with MS, and that I’d been forced to leave the world of academia, and go on disability. She was saddened with the news and we switched to other topics. When she called on Saturday, we talked about the ‘children’ and about how nicely they had grown into adults.
Then she said, “I know when we last talked, you said your walking was difficult. How’s that going?” Do I use the old stand-by and tell her I’m fine, or do I answer honestly? I opted for the latter. I let her know that this was a chronic, progressive disease, and I’d only get worse over time. She’s a nurse, and I think she already knew this. But I went on to say that I usually use a walker and sometimes a wheelchair or scooter. Then I added that my right hand was useless, and the left one was showing signs of the same. (I left out the bathroom issues – TMI!) There was a pause at the other end, then a tear-filled voice, “I hate hearing that. It makes me so sad.”
Again I had to make a choice: do I make her feel better with some soppy response, or do I just say, “Well, you asked.” This time I chose door number one, and I said that I really was fine with it all (lie), I found so many things to occupy my time (bigger lie), and things could always be worse (Pinocchio’s nose is really growing!) I think I do this so people won’t see me as a complainer; instead, they’ll think of me as being so brave in the face of a crippling menace. Lily is a sweet and kind person, and I know she’ll relate this to others, and I don’t want to encounter people with long, sad faces when they see me.
So the phone call ended on an up note, but it also made me realize what an actor (liar) I’ve become. Does anyone else try to present themselves differently? Do you feel better or worse for it?
Peace,
Muff
6 comments:
I find myself in this situation often. Such a dilemma - tell the truth or gloss it over? I am a glosser. My typical response is "doing okay". Inside I am screaming. If only I could spew out how awful it is to stumble like a drunk, feel so exhausted, have poor vision, etc., etc. The few times I have been honest, an awkward silence followed, so I don't broach my problems with most people.
Hello! =)
I read a book on my Kindle called "Lying" (it's a cheapie - like .99 ) and it really changed how I thought about things.
Basically he makes the point that you aren't doing yourselves (or the person who asked) any favors by telling white lies. He gave some great examples how you can use the truth as "teachable moments"... like in your case... he would say "SHE called YOU. How do you know she wasn't concerned about you in some way...and didn't know how to ask you THAT question? Maybe she read an article...or heard something on the news. So she called."
I never thought about that - how we deprive ourselves from "teachable moments". So now I tell the truth but I turn it into a teachable moment... I hope it makes sense. If not, (LOL) read the book. It's fantastic.
It's okay to tell the truth about your MS, it sucks. It's a boring life, usually... for me that's my truth.
If it's a general "how are you", I usually say "I'm okay". If asked specifically about MS or Lupus, I tell it like it is...briefly.
Thing is, when trying to comfort others by saying,
I have things to fill my day, it could be worse etc, I'm not lying, it's true!
Hi, Rae, That's exactly the way I've experienced it!
Hi, Sherry, I'll have to read that book -- sounds interesting.
Hi, Karen, You're right -- there is much truth in those statements.
Peace,
Muff
On a bad day, if I'm feeling quite horrible, I usually say (especially to people Who Know The Situation), "How much time do you have?" But I don't generally feel that bad any more (as much as I used to, at least).
My current Typical Response, especially to people who Know The Situation, is "Same every day, different every day." And sometimes I add, "Just like... life."
I don't know how I missed this very worthy post which describes beautifully the dilemma. As for me, I don't think that people really mean it when they ask, how are you. They're just being polite. But there are those like your friend who are genuinely interested, but even they have difficulty processing the response. Then I remind myself that I have difficulty sometimes processing the full magnitude of what has happened to me. So how can I expect more of others?
Judy
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